This volume includes an overview of tourette syndrome, including diagnosis; symptoms; and treatment, a look at controversies surrounding tourette syndrome, focusing on effectiveness of various treatment including diet, environmental factors, and deep brain stimulation, and personal stories of people living with tourette syndrome such a student that faces bullies, a woman who describes in detail the ‘anatomy of a tic’, and a concert pianist living with tourette syndrome.
One of the chapters in the book is based on material I had prepared for my other web site, SchoolBehavior.com.
Here is the book’s Table of Contents:
CHAPTER 1 Understanding Tourette Syndrome
1. Tourette Syndrome: An Overview — Belinda Rowland and Rebecca J. Frey
2. Tics and Tourette Syndrome Are Common Childhood Conditions — Leslie E. Packer
3. Coprolalia: The Cursing Tic — Lawrence Scahill
4. Tourette Syndrome May Occur with Related Conditions — Centers for Disease Control and Prevention
CHAPTER 2 Controversies Surrounding Tourette Syndrome
1. Various Drugs Can Help Control Tourette Syndrome — David Shprecher and Roger Kurlan
2. Behavioral Therapy Can Help Control Tourette Syndrome — Jeannine Stein
3. Identifying and Minimizing Enviromental Triggers Can Help Control Tourette Syndrome — Sheila Rogers
4. Dietary Changes Can Help Control Tourette Syndrome — Bruce Semon
5. Self-Hypnosis Can Help Control Tourette Syndrome — University Hospitals Case Medical Center
6. A Combination of Therapies Can Help Control Tourette Syndrome — Robert A. King and James F. Leckman
CHAPTER 3 Living with Tourette Syndrome
1. The Anatomy of a Tic — Beth Krah
2. A Teen Struggles with Coprolalia and Bullying — Austin
3. Seeking the Beauty of Stillness — Annette Racond
4. A Student Uses Humor to Teach About Tourette Syndrome — Holly Leber
You can find additional information here.
I am delighted to let everyone know that a new comprehensive book on Tourette Syndrome is available from Oxford University Press. Sheryl Pruitt and I were honored to be asked to write the chapter for educators. The book, Tourette Syndrome, is edited by Davide Martino and James F. Leckman. Here is the table of contents:
SECTION 1 CLINICAL PHENOMENOLOGY and EPIDEMIOLOGY
Chapter 1 Phenomenology of tics and sensory urges: the self under siege
James F Leckman, Michael H Bloch, Denis G Sukhodolsky, Lawrence Scahill, Robert A King (Child Study Center, Yale University, New Haven, CT, USA)
Chapter 2 The phenomenology of attention deficit hyperactivity disorder in Tourette syndrome
Aribert Rothenberger (University of Gottingen, Germany) and Veit Roessner (University Medical Center, Dresden, Germany)
Chapter 3 The phenomenology of obsessive-compulsive symptoms in Tourette syndrome
Ygor A Ferrao (Universidade Federal de Ciencias de Saude de Porto Alegre, Brazil), Pedro G de Alvarenga, Ana G Hounie, Maria Alice de Mathis, Maria C de Rosario and Euripedes Miguel (University of Sao Paulo Medical School, Brazil)
Chapter 4 Other psychiatric co-morbidities in Tourette syndrome
Danielle Cath (Utrecht University, The Netherlands) and Andrea Ludolph (University of Ulm, Germany)
Chapter 5 Clinical course and adulthood-outcome in Tourette syndrome
Michael Bloch (Yale Child Study Center, New Haven, CT, USA)
Chapter 6 Prevalence and methods for population screening
Lawrence Scahill (Yale Child Study Center, New Haven, CT, USA) and Soren Dalsgaard (Denmark)
SECTION 2 ETIOLOGY
Chapter 7 Genetic susceptibility in Tourette syndrome
Thomas Fernandez and Matthew W State (Child Study Center, Yale University, New Haven, CT, USA)
Chapter 8 Perinatal adversities and Tourette syndrome
Pieter J Hoekstra (University of Groningen, The Netherlands)
Chapter 9 Infections and tic disorders
Tanya K Murphy (University of Florida College of Medicine, Gainesville, FA, USA)
SECTION 3 PATHOPHYSIOLOGY
Chapter 10 Cellular and molecular pathology in Tourette syndrome
Flora M Vaccarino, Yuko Kataoka and Jessica Lennington (Child Study Center, Yale University, New Haven, CT, USA)
Chapter 11 Electrophysiology in Tourette syndrome
Michael Orth (University of Ulm, Germany)
Chapter 12 Neurobiology and functional anatomy of tic disorders
Deanna J Greene, Kevin J Black, Bradley L Schlaggar (University of Washington, St. Louis, MO, USA)
Chapter 13 The Neurochemistry of Tourette syndrome
Harvey S Singer (Johns Hopkins University School of Medicine, Baltimore, MD, USA)
Chapter 14 Immunity and stress response in Tourette syndrome
Davide Martino (Queen Mary University of London, London, UK)
Chapter 15 Animal models of tics
Kevin W McCairn, Yukio Imamura and Masaki Isoda (Okinawa Institute of Science and Technology, Okinawa, Japan)
SECTION 4 DIAGNOSIS AND ASSESSMENT
Chapter 16 Wither the relationship between etiology and phenotype in Tourette syndrome?
Mary M Robertson (St. George’s Hospital and Medical School, London, UK) and Valsamma Eapen (University of New South Wales, Sydney, Australia)
Chapter 17 The differential diagnosis of tic disorders
Roger Kurlan (Atlantic Neuroscience Institute, Summit, NJ, USA)
Chapter 18 Comprehensive assessment strategies
Robert A King and Angeli Landeros-Weisenberger (Child Study Center, Yale University, New Haven, CT, USA)
Chapter 19 Clinical rating instruments in Tourette syndrome
Andrea E Cavanna and John CP Piedad (University of Birmingham, Birmingham, UK)
Chapter 20 Neuropsychological assessment in Tourette syndrome
Tara Murphy (Great Ormond Street Hospital for Children, London, UK) and Clare Eddy (University of Birmingham, Birmingham, UK)
Chapter 21 Social and adaptive functioning in Tourette syndrome
Denis G Sukhodolsky, Virginia W Eicher and James F Leckman (Child Study Center, Yale University, New Haven, CT, USA)
SECTION 5 TREATMENT
Chapter 22 Psychoeducational interventions: what every parent and family member needs to know
Eli R Lebowitz and Lawrence Scahill (Child Study Center, Yale University, New Haven, CT, USA)
Chapter 23 Cognitive-behavioural treatment for tics
Matthew R Capriotti and Douglas W Woods (University of Wisconsin, Milwaukee, WI, USA)
Chapter 24 Pharmacological treatment of tics
Veit Roessner (University Medical Center, Dresden, Germany) and Aribert Rothenberger (University of Gottingen, Germany)
Chapter 25 Treatment of psychiatric co-morbidities in Tourette syndrome
Francesco Cardona (University of Rome “La Sapienza”, Rome, Italy) and Renata Rizzo (University of Catania, Catania, Italy)
Chapter 26 Surgical treatment of Tourette syndrome
Mauro Porta, Marco Sassi and Domenico Servello (IRCCS Galeazzi, Milan, Italy)
Chapter 27 Alternative treatments in Tourette syndrome
Beata Zolovska and Barbara Coffey (NYU Child Study Center, New York City, NY, USA)
SECTION 6 RESOURCES & SUPPORT
Chapter 28 Information and social support for patients and families
Kirsten Muller-Vahl (Hannover Medical School, Hannover, Germany)
Chapter 29 Information and support for educators
Sheryl K Pruitt (Parkaire Consultants, Marietta, GA, USA) and Leslie E Packer (Independent Practice, North Bellmore, NY)
Chapter 30 Tourette syndrome support organisations around the world
Louise Roper (University of Birmingham, Birmingham, UK), Peter Hollenbeck (Purdue University, West Lafayette, IN, USA) and Hugh Rickards (University of Birmingham, Birmingham, UK)
The Boston Business Journal had a news story today that caught my eye:
The U.S. Food and Drug Administration has sent a warning letter to the Judge Rotenberg Educational Center in Canton, Mass., saying the Graduated Electronic Decelerators it uses to shock patients with autism and severe behavioral disabilities are in violation of FDA regulations.
The FDA says it has twice before notified the Center, on May 23, 2011, and June 29, 2012, that because changes were made to the device since it was approved, the center must file a new application for approval with the FDA. The Judge Rotenberg Center is the sole manufacturer of the GED device, and it is the only facility in the U.S. that uses it. The latest letter from the FDA was dated Dec. 6.
Read more here.
If the devices have been out of compliance with FDA regulations for a while, why didn’t the FDA shut down their last year after JRC reportedly failed to respond appropriately to their May 2011 notification? This federal agency is supposed to be protecting health. And when did they first find out that JRC was using out of compliance devices?
In related news, the U.S. Department of Justice Office of Civil Rights informed me several months ago that its 2010 “routine investigation” of JRC’s use of shock on disabled residents was still under investigation. That can mean a couple of different things, one of which is that they’re trying to negotiate something with JRC to avoid having to take them to court. Alternatively, it could mean that they’re just really slow and not rushing or making this investigation a priority.
When the health and welfare of children and disabled adults may be at risk, the government should be moving much faster than it has to date.
Wow. Wish we had more schools like this:
Whittier Elementary School in West Valley City has all the usual fixtures, from desks to whiteboards to a playground, but it also has the unexpected — a climbing wall, a disco ball and a zipline.
Its wing for special needs students includes a sensory room with multi-colored lights, a boom box with calming music, a vibrating mat and soft mats for jumping or resting. The nurse’s office has three full-time nurses and a host of medical equipment. The physical therapy room is typically used by about 20 students a day, but it serves up to 60 on busy days.
Read more on in the Salt Lake Tribune.
I shudder whenever I see news stories suggesting that an individual accused of heinous crimes may have Tourette’s Disorder or some related diagnosis, as such stories may mislead the public into thinking that these conditions cause or increase the risk of bad or criminal behavior.
In Norway, Anders Breivik is on trial for actions that he has already confessed to: the bombing of government buildings in Oslo and then an attack on a youth camp in Utøya. All told, he left 77 dead. The only issue before the court at this time is whether Breivik was legally sane at the time of his terrorist actions or if he was insane.
Enter the psychiatric opinions, stage left. The Local reports:
Ulrik Fredrik Malt, a psychiatry professor at the University of Oslo, said the 33-year-old Breivik was suffering from Asperger’s syndrome, Tourette’s syndrome and narcissistic personality disorder, but was likely not psychotic.
The question of Breivik’s sanity is key to his ongoing trial. Though judges are certain to find him guilty, they must decide if he was criminally sane or not.
Their decision would affect whether he gets mental treatment in a secure psychiatric facility.
Asperger’s is a developmental disorder on the autistic spectrum that often is characterized by a lack of empathy. Tourette’s is a neurological disorder marked by tics and verbal outbursts.
Malt said Tourette’s could explain why Breivik has frequently smiled inappropriately throughout the trial.
The psychiatrist left open the possibility that Breivik was suffering from paranoid psychosis but said the chances of such a condition were less than 25 percent.
Breivik, who admitted killing 77 people in a July 22nd bomb attack and shooting rampage, wants to prove his sanity because he thinks more people would give credence to his extremist ideology — described as a crusade against multiculturalism and a pending “Muslim invasion” of Norway and Europe.
Malt’s opinion is based on his observations of Breivik during his trial, which started on April 16th, but he has not interviewed the defendant.
So what impression do such media reports create in the public’s mind? Is it any wonder that some parents are reluctant to have others know their children’s diagnoses?
We really need to do a better job of educating the public.